News

The Year 2019

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Barriers and Enablers to Employment:
Black Disabled Peoples Living with Sickle Cell Disorder

Dr. Maria Berghs Lecturer in Health and Wellbeing in Society and Social Study of Thalassaemia and Sickle Cell De Montfort University with Sickle Cell Society and OSCAR Sandwell are currently doing some research

A message from Lola Kehinde

“I have lost my husband and friends to sickle cell disease complications, and therefore will like to use this forum as an opportunity to generate support and awareness for the great work the society does and to enable further research into treatment to help sufferers live life to their fullest, especially the next generations”.

READ FULL STORY ABOUT HER ANNUAL CHARITY EVENT
Patron Dorothy Zack-Wlliams and Trustee, Olufunke Aeleke, 2018 Xmas perty

“I have lost my husband and friends to sickle cell disease complications, and therefore will like to use this forum as an opportunity to generate support and awareness for the great work the society does and to enable further research into treatment to help sufferers live life to their fullest, especially the next generations”.

Description
Sickle cell disease is a lifelong inherited condition that affect sufferer’s haemoglobin. Most people affected are of African or African-Caribbean origin, although the sickle gene is found in all ethnic groups. It is estimated that there are between 12,500 and 15,000 people with sickle cell disease in the UK.

Please join me in conjunction with the National Sickle cell society on our 1st charity ball to raise funds for the society for further research and to support sufferers in memory of Akinola Michael Kehinde

Sign Our Petition

Provide NHS prescription payment exemption

Please sign the petition to help with prescription costs. We have been told that if SC patients are awarded exemption, other sufferers of other blood related conditions. We think we are deserving case and free prescriptions will help to alleviate the suffering of SC & thalassaemia, so the more we  sign up  the stronger our voices.
Sign Petition