This small independent charity represents people with
Sickle Cell and Thalassaemia conditions, and their families, carers and friends, in the Merseyside area.
Is a inherited blood disorder that affects the red blood causing them to change shape resembling the shape of a farmer’s sickle (C)shape. This is called Sickling of the red blood cells.
It is caused by a gene that affects how the red blood cells develop. If both parents have the gene, there is a 1 in 4 chance of each child being born with sickle cell disease. Sickle cell disease can cause episodes of acute pain (crisis), anaemia, increased risk of infections, jaundice and chest complications. They are life threatening conditions in particular young children. Although any one
with sickle cell is vulnerable and is at risk. Sufferers with sickle cell requires treatment and monitoring throughout their lives.
Thalassaemia
Thalassaemia
This is a group of inherited conditions caused by a reduction in the amount
of haemoglobin produced in the red blood cells.People with Thalassaemia
can have various degrees of anaemia. If severe,treatment with regular blood
transfusions are needed. The blood transfusions can cause the body to build up a high concentration of iron. Certain drugs are used to remove the excess of iron and this provides a better chance of long term survival.
Living With Sickle Cell
Living with sickle cell takes an incredible amount of courage and strength.
It is good to remember that you are not alone.
Together we can all spark change for sickle cell and help shift the current misconceptions that
impact on the experience of living with sickle cell and make it more challenging than it should be.